The NapPress

My Heart Glows Today, because I Empathize

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My Heart Glows Today, because I Empathize

I wrote this a decade ago, just found it in my old discarded myspace archives.  Find Comfort My Friend, from a Fellow PWN (Sister Spoonie) Today my heart glows because I could help. Dark in the night of our lives we walk alone, But together, when we reach out for help, An angel is there, someone who understands. Tears of joy stream down my face, because she called. When faced with chronic illness, we are terrified. So many questions, so few who understand. Does anyone out there Know what I am going through? A smile glows in my heart today, because I...

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Evolution of Dance: Cataplexy Edition

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Evolution of Dance: Cataplexy Edition

Evolution of Dance: Cataplexy Edition From the Head bobble  to the knee Jerk Je Jerks to Break my foot Dancing, Sleepy American takes you on an exclusive tour of the evolution of Dance, Cataplexy Edition.  What my Knees Jerk Je Jerk and you know You're funny!

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Sleepy American Heroes~ Episode 1

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SleepyAmerican leads a team of badass invisible disability advocates on #SleepyAmericanHeroes #narcolepsy #ms #LymeDisease #Fibromyalgia etc.  A Momentous Day for Sleepy American! First, Nominated WEGO Health Activist Hero 2016 #HAAwards https://awards.wegohealth.com/nominees/12337 , and the Premiere of my original web series Spotlighting persons with Invisible Disabilities as a League of SuperHeroes. #SleepyAmericanHeroes #TickTocIntheHandsofLyme

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Sleepy American Heroes S01E04 : #DisabilityMarch

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Sleepy American Heroes S01E04 : #DisabilityMarch

WWW.disabilitymarch.com Sleepy American Heroes S01E04 : #DisabilityMarch http://buff.ly/2kcDAu3 #disability #womensmarch #whyImarch Illness-Splaining simplified via Sleepy American​’s Superpower…MY #Empizer which momentarily shocks my or another person’s life experiences, esp. chronic illness via mere touch. Shocking empathic understanding immediately followed by a stunned pained facial expression and multiple apologies for ever doubting you and your conditions. I virtually march with Narcolepsy with Cataplexy, Fibromyalgia, RA, Hepatic Adenomas, profound all limb severe peripheral diabetic neuropathy Sleepy American Heroes S01E04 : #DisabilityMarch http://buff.ly/2kcDAu3 #disability #womensmarch #whyImarch www.sleepyamerican.com Join us! www.disabilitymarch.com

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I have Narcolepsy, and I Need to Sleep [Original Poem]

I have Narcolepsy, and I Need to Sleep [Original Poem]

I have Narcolepsy and I Need to Sleep. (Ah, the Inaccurate Stereotype Repeats...) But Without  Provigil, Xyrem and Effexor XR, My brain is confused between awake and asleep.  My dreams become Real- on Elm St. I See Freddy, I feel pain as he slashes my flesh, I cannot move, scream, my heart's in a panic I say a prayer and Freddy scoffs and burns me.     Sleep Paralysis ~  its not for the weak.  Especially, when no one thinks I'm being attacked by my Sleeper Creeper,  because I look ASLEEP. and I am NOT counting sheep!  Unable to move...

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