The NapPress

2006 Narcolepsy Network National Conference in Dallas, Texas: Summary and Highlights

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The conference was totally awesome, an experience I will never forget which has deeply inspired me in my creative venues.   Finally, a social gathering when it was completely acceptable to say, "I'll see you later, I need to nap first!"  A gathering where everyone was your friend, I believe there's no such thing as a completely heartless, mean narcoleptic, as I've yet to find an unfriendly one!  Alice was a perfect roommate, and I miss all of you already.  I really want to go to San Diego next year, and my husband and I plan to make a road trip out of it spanning 2 weeks!  The conference...

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How Loss Makes Us More

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How do I define who I am? Who am I? What is at the gooey center of Rachelness? If I were a journal article, what would my abstract read? How do we define who we are and have become without including and acknowledging the events and obstacles in our lives we have both encountered with joy and battles in which we have survived defeat? We cannot. We are the sum of our life experiences, that’s why each of us unique, a blessing to this earth, and we should love one another enough to listen and comprehend our neighbor’s journey to...

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My Origninal Song Lyrics for 2007 "Prison of Pain": Living with Narcolepsy and Fibromyalgia

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My Origninal Song Lyrics for 2007 "Prison of Pain": Living with Narcolepsy and Fibromyalgia

My Prison of Pain   Living my life, Going to school, And then suddenly, Planes fly into the towers... What's going on?       That same week, Whenever I sleep, I find myself Having nightmares that seem real-- And I cannot speak.   ******Chorus***********   I'm in a prison of pain, My body's a prison of pain, Everything I do--- There's no escape. Can you help me now?   I'm in a prison of pain, My body's a prison of pain, Everything I do--- There's no escape. Is it hopeless now? ***********************     The voices I can hear,...

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Trapped Inside Myself, Sound Cloud Melody with Lyrics

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I wake at night, Unable to scream or fight.What do I doWhen the numbness plightsAs the terror escalates,The monsters come celebrate.My fears unreal,But why does it feel like this?So take me into another world,A place I can beFree at last,Where I can even stand upAnd Laugh.So Pain will become a mere memory...No one Understands me, because....Chorus***I’m Trapped Inside Myself, I Can’t even break free.My mind plays tricks, If even for a little bit,Been kicked to nothingness.I’m Trapped inside myself, Escaping is everything, I can resist,If only for a little bit; My dreams are pillaged. I’m Trapped Inside myself**Chorus**Nobody Around Understands,I...

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Explaining and describing the Symptoms of Narcolepsy to a Person without Narcolepsy

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Excellent descriptions by cybereaper as found at http://www.talkaboutsleep.com/message-boards/viewtopic.php?p=84503 : "For a real 'explanation, I have tried, in a recent forum with someone who watched an N get fired and wanted to know more, to explain it to them, this is what I wrote and what they said - sort of long, but I will snippet alot. Some of you may agree on my explanation, some may not, but I wanted to at least post my attempts at explaining this.. so you can see the lengths we could go to in order to expain it, but the continued lack of understanding...

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