The NapPress — sleep week

Narcolepsy is like a vehicle’s failing or slipping transmission

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Narcolepsy is like a vehicle’s failing or slipping transmission

  The origin of Narcolepsy in where One very small part of our hypothalamus of those living with type one Narcolepsy with Cataplexy is housed within the hypothalamus, part of our limbic system controlling our most basic needs and drive for survival, reproduction. The immune system attacks the ventrolateral preoptic nucleus (VLPO or VLPN), obliterating the neurons secreting Hypocretin (Orexin) the chemical responsible for controlling our sleep-wake cycles. Once this happens (an autoimmune response) those neurons are gone. The brain with Narcolepsy no longer progresses from a well-evolved circadian Rhythm seamlessly changing gears from the hypnagogic Stage 1, stage 2, to...

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DISINVINCIBLE On The NapCast Rising Voices of Narcolepsy Story

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DISINVINCIBLE On The NapCast Rising Voices of Narcolepsy Story

I am not a throwaway person; I am more than what I was before narcolepsy. My inner strength and the profound ability for empathetic understanding, enjoying the little things, stubbornly pushing to succeed in feats and what I can do, and a seasonably unique perspective chronic invisible illness has had a profound effect on my life. I have the superpowers include determination, resiliency, empathetic understanding and empathetic projection. I see and feel things that are invisible to other people, and help share other’s experiences to increase empathetic understanding.

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Sleepy American has found the BEST friends in DFW Narcolepsy Friends!

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Sleepy American has found  the BEST friends in DFW Narcolepsy Friends!

DFW Narcolepsy Friends! Our local support group! I finally found a group of friends that I am not asked to spell or define 'CATAPLEXY'. I love ❤️ to help others newly diagnosed, suspect narcolepsy, pregnancy n narco as well as Disability. Most importantly how we are Really the most Awesome Superheroes. Sleepy American Heroes. Thanks for donating anything you feel called on your ❤️ to a cause so worthy and part of our members' lives. Thanks so much, Sleepy American

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2006 Narcolepsy Network National Conference in Dallas, Texas: Summary and Highlights

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The conference was totally awesome, an experience I will never forget which has deeply inspired me in my creative venues.   Finally, a social gathering when it was completely acceptable to say, "I'll see you later, I need to nap first!"  A gathering where everyone was your friend, I believe there's no such thing as a completely heartless, mean narcoleptic, as I've yet to find an unfriendly one!  Alice was a perfect roommate, and I miss all of you already.  I really want to go to San Diego next year, and my husband and I plan to make a road trip out of it spanning 2 weeks!  The conference...

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Sleeper of the House: Rare Disease Legislative Advocates Week Feb 26-March 3rd 2017

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This Holiday Season Please Spare some Change so I, Sleepy American can create real change for many with invisible disabilities on Capitol Hill during Rare Disease Week 2017.  I represent ALL invisible disabilities from Lupus to Parkinson's, from Autism to Fibromyalgia. Having lived in extreme poverty and reliant on Government assistance in some of the saddest parts of my life. Change for Real Change #raredc2017  The only way I can make this happen for US, is if I can raise enough to cover travel... airplane, trans, taxi, hotel, meals, etc. for #RAREDC2017 Week. The State of TX will only stipend me...

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