The NapPress — rare disease

Narcolepsy is like a vehicle’s failing or slipping transmission

#worldnarcolepsyday Advocacy all natural and Unsolicited Advisors: Civil Coping Approaches to set the Record Straight about your Chronic Illness anxiety arthritis Autism Autoimmune Disorders automatic transmission automotive bankruptcy Batman bedding Bravery Cancer car cataplexy chronic illness chronic pain crumbling custom tee shirts cwn dangerously funny daylight savings time Dfw Narcolepsy Friends diabetes Disability disability march Disillusioned Childhood divorce divorcemoon Doubters dream empathy Evolution of Dance: Cataplexy Edition Expensive faith fibromyalgia foreclosure gif files grand opening healing hepatic adenoma high risk hypocretin L-Citruline loss love lupus mom N(arcolepsy) Bop! nap nap cave napcave NapMan naptastic narcolepsy narcolepsy awareness narcolepsy network narcolepsy not alone national napping day near death new product new products patient story poem pomegranate pregnancy rare disease relax Rem Rheumitoid Arthirtis scary shirt Sick Kids sleep sleep cycles sleep paralysis sleep week Sleeper of the House sleepy sleepy american Sleepy American Heroes S01E02:Cindy Vs. The Huffle Puffle SleepyAmerican Heroes Sloth slow wave spiritual healing spoonie standard transmission strong Suddenly Sleepy Saturday: Empizizing via Daylight Saving Time superheroes true story World Narcolepsy Day xyrem

Narcolepsy is like a vehicle’s failing or slipping transmission

  The origin of Narcolepsy in where One very small part of our hypothalamus of those living with type one Narcolepsy with Cataplexy is housed within the hypothalamus, part of our limbic system controlling our most basic needs and drive for survival, reproduction. The immune system attacks the ventrolateral preoptic nucleus (VLPO or VLPN), obliterating the neurons secreting Hypocretin (Orexin) the chemical responsible for controlling our sleep-wake cycles. Once this happens (an autoimmune response) those neurons are gone. The brain with Narcolepsy no longer progresses from a well-evolved circadian Rhythm seamlessly changing gears from the hypnagogic Stage 1, stage 2, to...

Read more →


Sleeper of the House: Rare Disease Legislative Advocates Week Feb 26-March 3rd 2017

Batman napcave narcolepsy narcolepsy awareness national napping day patient story Rare Disease Rare Disease week Rare Disease Week on Capitol Hill sleep paralysis sleep week Sleeper of the House sleepy american true story World Narcolepsy Day

This Holiday Season Please Spare some Change so I, Sleepy American can create real change for many with invisible disabilities on Capitol Hill during Rare Disease Week 2017.  I represent ALL invisible disabilities from Lupus to Parkinson's, from Autism to Fibromyalgia. Having lived in extreme poverty and reliant on Government assistance in some of the saddest parts of my life. Change for Real Change #raredc2017  The only way I can make this happen for US, is if I can raise enough to cover travel... airplane, trans, taxi, hotel, meals, etc. for #RAREDC2017 Week. The State of TX will only stipend me...

Read more →


The Other Postpartum Nightmare

anxiety mom narcolepsy panic attacks patient advocate rare disease The Other Postpartum Nightmare

The Other Postpartum Nightmare

The Other Postpartum Nightmare

Read more →