The NapPress — narcolepsy

Narcolepsy is like a vehicle’s failing or slipping transmission

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Narcolepsy is like a vehicle’s failing or slipping transmission

  The origin of Narcolepsy in where One very small part of our hypothalamus of those living with type one Narcolepsy with Cataplexy is housed within the hypothalamus, part of our limbic system controlling our most basic needs and drive for survival, reproduction. The immune system attacks the ventrolateral preoptic nucleus (VLPO or VLPN), obliterating the neurons secreting Hypocretin (Orexin) the chemical responsible for controlling our sleep-wake cycles. Once this happens (an autoimmune response) those neurons are gone. The brain with Narcolepsy no longer progresses from a well-evolved circadian Rhythm seamlessly changing gears from the hypnagogic Stage 1, stage 2, to...

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DISINVINCIBLE On The NapCast Rising Voices of Narcolepsy Story

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DISINVINCIBLE On The NapCast Rising Voices of Narcolepsy Story

I am not a throwaway person; I am more than what I was before narcolepsy. My inner strength and the profound ability for empathetic understanding, enjoying the little things, stubbornly pushing to succeed in feats and what I can do, and a seasonably unique perspective chronic invisible illness has had a profound effect on my life. I have the superpowers include determination, resiliency, empathetic understanding and empathetic projection. I see and feel things that are invisible to other people, and help share other’s experiences to increase empathetic understanding.

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Sleepy American has found the BEST friends in DFW Narcolepsy Friends!

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Sleepy American has found  the BEST friends in DFW Narcolepsy Friends!

DFW Narcolepsy Friends! Our local support group! I finally found a group of friends that I am not asked to spell or define 'CATAPLEXY'. I love ❤️ to help others newly diagnosed, suspect narcolepsy, pregnancy n narco as well as Disability. Most importantly how we are Really the most Awesome Superheroes. Sleepy American Heroes. Thanks for donating anything you feel called on your ❤️ to a cause so worthy and part of our members' lives. Thanks so much, Sleepy American

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Why I really have earned 30 this Birthday: How Hepatica made me miss the Simple days of just Narcolepsy, Fibro, and RA

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This is my story documenting my recent health crisis battle which I have submitted to Dr. Oz, The Doctors, and The Discovery Health Channel. LOL, They would probably have to devote an entire show just to describe and convey what each of my Medical Conditions and Illnesses are and how they Disrupt my Health ;p   Rare, serious, and/or chronic conditions seem to find me. I am a permanently disabled young lady On SSI disability and Texas SSI Star Medicaid who’s 'normal' was severe Narcolepsy with Cataplexy, RA, and Fibromyalgia. In April 2010, I began having severe upper right hand abdominal pain...

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Window Pains, original Poem written during the 2011 Narcolepsy Network Conference Creative Writing Session

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Large space I came with high hopes. Hopes for us, hopes for a garden, hopes you'd provide us with great joy to watch our future children play and grow. Hopes I would one day afford and have the strength to create the garden of my dreams. The mirage of colors of gorgeous blooms and their sweet perfume fragrance the air and our souls.With our plaid patterned sofa's back against your enormity, you fed in the heat in the summer, sucked the warmth from all in the winter. Dressing you with royal blue curtains-- a challenge for your size, but you...

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