The NapPress — chronic illness

Narcolepsy is like a vehicle’s failing or slipping transmission

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Narcolepsy is like a vehicle’s failing or slipping transmission

  The origin of Narcolepsy in where One very small part of our hypothalamus of those living with type one Narcolepsy with Cataplexy is housed within the hypothalamus, part of our limbic system controlling our most basic needs and drive for survival, reproduction. The immune system attacks the ventrolateral preoptic nucleus (VLPO or VLPN), obliterating the neurons secreting Hypocretin (Orexin) the chemical responsible for controlling our sleep-wake cycles. Once this happens (an autoimmune response) those neurons are gone. The brain with Narcolepsy no longer progresses from a well-evolved circadian Rhythm seamlessly changing gears from the hypnagogic Stage 1, stage 2, to...

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Why I really have earned 30 this Birthday: How Hepatica made me miss the Simple days of just Narcolepsy, Fibro, and RA

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This is my story documenting my recent health crisis battle which I have submitted to Dr. Oz, The Doctors, and The Discovery Health Channel. LOL, They would probably have to devote an entire show just to describe and convey what each of my Medical Conditions and Illnesses are and how they Disrupt my Health ;p   Rare, serious, and/or chronic conditions seem to find me. I am a permanently disabled young lady On SSI disability and Texas SSI Star Medicaid who’s 'normal' was severe Narcolepsy with Cataplexy, RA, and Fibromyalgia. In April 2010, I began having severe upper right hand abdominal pain...

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Window Pains, original Poem written during the 2011 Narcolepsy Network Conference Creative Writing Session

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Large space I came with high hopes. Hopes for us, hopes for a garden, hopes you'd provide us with great joy to watch our future children play and grow. Hopes I would one day afford and have the strength to create the garden of my dreams. The mirage of colors of gorgeous blooms and their sweet perfume fragrance the air and our souls.With our plaid patterned sofa's back against your enormity, you fed in the heat in the summer, sucked the warmth from all in the winter. Dressing you with royal blue curtains-- a challenge for your size, but you...

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How Loss Makes Us More

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How do I define who I am? Who am I? What is at the gooey center of Rachelness? If I were a journal article, what would my abstract read? How do we define who we are and have become without including and acknowledging the events and obstacles in our lives we have both encountered with joy and battles in which we have survived defeat? We cannot. We are the sum of our life experiences, that’s why each of us unique, a blessing to this earth, and we should love one another enough to listen and comprehend our neighbor’s journey to...

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My Origninal Song Lyrics for 2007 "Prison of Pain": Living with Narcolepsy and Fibromyalgia

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My Origninal Song Lyrics for 2007 "Prison of Pain": Living with Narcolepsy and Fibromyalgia

My Prison of Pain   Living my life, Going to school, And then suddenly, Planes fly into the towers... What's going on?       That same week, Whenever I sleep, I find myself Having nightmares that seem real-- And I cannot speak.   ******Chorus***********   I'm in a prison of pain, My body's a prison of pain, Everything I do--- There's no escape. Can you help me now?   I'm in a prison of pain, My body's a prison of pain, Everything I do--- There's no escape. Is it hopeless now? ***********************     The voices I can hear,...

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